Links for Patients

Welcome to the Links for Patients Page.  Below you will find some sites that may be helpful to people seeking information after a diagnosis.

Have a suggestion for a site we should include?  Let us know what you’ve found helpful by sending an email to [email protected]

General Information
Livestrong – Lance Armstrong Foundation This nonprofit organization “Fights to improve lives affected by cancer.”  Site suggested by Board Member Donna Doherty

Connecticut Cancer Partnership has announced the launch of a new website highlighting Cancer Trials in Connecticut,  http://ctcancertrials.org.   Designed for use by both patients and clinicians, the ultimate goal of this new information resource is to increase awareness of and participation in clinical trials.  This site pulls a listing of clinical trials from the National Cancer Institute’s database at www.clinicaltrials.gov and streamlines the information for residents of Connecticut providing a compilation of cancer clinical trials by location and disease.   Site suggested by  Shana Ross

All hospitals and centers are responsible for maintaining their trial listings on www.clinicaltrials.gov to ensure that the postings on the new state website are accurate.

Patient Advocacy Information
Patient Advocate Foundation  Patient Advocate Foundation’s Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.   Site suggested by Board Chair, Loreen Brown

Health Care Advocate of CT   The Mission of the Office of the Healthcare Advocate is to assist consumers with healthcare issues through the establishment of effective outreach programs and the development of communications related to consumer rights and responsibilities as members of managed care plans. The office focuses on assisting consumers to make informed decisions when selecting a health plan; assisting consumers to resolve problems with their health insurance plans; and identifying issues, trends and problems that may require executive, regulatory or legislative intervention.   Site suggested by Board Chair, Loreen Brown

Brain Cancer Sites
American Brain Tumor Association The American Brain Tumor Association (ABTA) provides critical funding to researchers working toward breakthroughs in brain tumor diagnosis, treatment and care, with the ultimate goal of finding a cure.  Site suggested by CSC National

Breast Cancer Sites
Breastcancer.org A nonprofit organization dedicated to providing the most reliable, complete and up-to-date information about breast cancer.  Their mission is “to help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decision for their lives.”  Site suggested by CSC National

Celebrating Life African American women speaking out about cancer.  Site suggested by CSC National

Living Beyond Breast Cancer This site is “dedicated to assisting you, whether you are newly diagnosed, in treatment, recently completed treatment, are years beyond or are living with metastatic breast cancer.  We are also here for your family members, caregivers, friends and healthcare providers to provide breast cancer information and support.” Site suggested by CSC National

National Breast Cancer Coalition Their mission is “to end breast cancer by January 1, 2020. Guided by three primary goals – research, access and influence – NBBC has been a powerful voice for women and men across the country since its inception.”   Site suggested by CSC National

Lung Cancer
LUNGevity Foundation is the largest private funder of lung cancer with a world-renowed scientific advisory board, and the largest grassroots and lung cancer support networks.  These networks offer 24 hr peer-to-peer support both online and through a phone buddy program, education and help understanding specific lung cancer medical issues from medical experts and an awareness raising advocacy program.  The mission of LUNGevity Foundation is to have a meaningful impact on improving lung cancer survival rates by funding innovative research into early detection and more effective treatments, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.  Site was added because LUNGevity reached out to us to help spread the word of support for lung cancer patients.

Mesothelioma Sites
Fight back against mesothelioma. Four words that mark our mission at The Mesothelioma Center. We’re here to help those who need to know how to battle this disease. Our website is loaded with information about treatment, and what we do best is collect information about mesothelioma cancer and use it to help people and families affected by the disease  Site was added because Mesothelioma Center reached out to us to help spread the word of support for mesothelioma cancer